Tom Kindlon

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67 following
Dublin, Ireland  ·  Myalgic Encephalomyelitis patient 29 yrs. Pins on ME/Chronic Fatigue Syndrome or #ChronicIllness/#InvisibleIllness/#Spoonie. Not all pin wordings my own.
Tom Kindlon
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Joan McParland ‏ @JoanMcParland  GET just keeps #PWME banging their heads off the ME glass ceiling & every bang pushes you deeper into the depths of hell. #CanYouSeeMEnow #FirstDoNoHarm2ME

Joan McParland ‏ @JoanMcParland GET just keeps #PWME banging their heads off the ME glass ceiling & every bang pushes you deeper into the depths of hell. #CanYouSeeMEnow #FirstDoNoHarm2ME

From the updated CDC website created for healthcare practitioners. Bolding is theirs. https://www.cdc.gov/me-cfs/healthcare-providers/presentation-clinical-course/etiology-pathophysiology.html … #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

From the updated CDC website created for healthcare practitioners. Bolding is theirs. https://www.cdc.gov/me-cfs/healthcare-providers/presentation-clinical-course/etiology-pathophysiology.html … #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Zoe (16) is currently studying towards her GCSE exams. Due to her ME she’s missed a lot of school time. We spoke with Zoe and her family about how telepresence robot, AV1, developed specifically to enable pupils to participate in class lessons remotely, has helped her. --- "Without AV1 she would probably have had to defer or drop history, which is her favourite subject and the one she wants to continue to A-level" -I think this is because only certain subjects tend to be offered for home…

Zoe (16) is currently studying towards her GCSE exams. Due to her ME she’s missed a lot of school time. We spoke with Zoe and her family about how telepresence robot, AV1, developed specifically to enable pupils to participate in class lessons remotely, has helped her. --- "Without AV1 she would probably have had to defer or drop history, which is her favourite subject and the one she wants to continue to A-level" -I think this is because only certain subjects tend to be offered for home…

From: (Free full text) "Functional Status and Well-Being in People with #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome Compared with People with Multiple Sclerosis & Healthy Controls" by @mecfsbiobank (March 2018) https://link.springer.com/article/10.1007%2Fs41669-018-0071-6 … #MEcfs #CFS

From: (Free full text) "Functional Status and Well-Being in People with #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome Compared with People with Multiple Sclerosis & Healthy Controls" by @mecfsbiobank (March 2018) https://link.springer.com/article/10.1007%2Fs41669-018-0071-6 … #MEcfs #CFS

Free full text: "Functional Status and Well-Being in People with #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome Compared with People with Multiple Sclerosis & Healthy Controls" (March 2018)  https://link.springer.com/article/10.1007%2Fs41669-018-0071-6  #MEcfs #CFS

Free full text: "Functional Status and Well-Being in People with #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome Compared with People with Multiple Sclerosis & Healthy Controls" (March 2018) https://link.springer.com/article/10.1007%2Fs41669-018-0071-6 #MEcfs #CFS

Data showing how people with #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome generally have to live on a reduced income From: "Functional Status & Well-Being in People with #MEcfs Compared with #MultipleSclerosis & Healthy Controls" by @mecfsbiobank https://link.springer.com/article/10.1007%2Fs41669-018-0071-6 …

Data showing how people with #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome generally have to live on a reduced income From: "Functional Status & Well-Being in People with #MEcfs Compared with #MultipleSclerosis & Healthy Controls" by @mecfsbiobank https://link.springer.com/article/10.1007%2Fs41669-018-0071-6 …

Data showing how people with #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome generally have to live on a reduced income From: "Functional Status & Well-Being in People with #MEcfs Compared with #MultipleSclerosis & Healthy Controls" by @mecfsbiobank https://link.springer.com/article/10.1007%2Fs41669-018-0071-6 …

Data showing how people with #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome generally have to live on a reduced income From: "Functional Status & Well-Being in People with #MEcfs Compared with #MultipleSclerosis & Healthy Controls" by @mecfsbiobank https://link.springer.com/article/10.1007%2Fs41669-018-0071-6 …

More data showing how #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome greatly affects people's ability to work.  From "Functional Status & Well-Being in People with #MEcfs Compared with #MultipleSclerosis and Healthy Controls" by @mecfsbiobank  https://link.springer.com/article/10.1007%2Fs41669-018-0071-6   #CFS

More data showing how #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome greatly affects people's ability to work. From "Functional Status & Well-Being in People with #MEcfs Compared with #MultipleSclerosis and Healthy Controls" by @mecfsbiobank https://link.springer.com/article/10.1007%2Fs41669-018-0071-6 #CFS

#chronicillness #chroniclife #ChronicPain #Spoonielife #hiddenillness #invisibleillness #ChronicIllnesses #Spoonies #InvisibleDisabilities   https://thesickpanda.tumblr.com/post/174988037534/thefibrodiaries-disabled-people-who-can-walk

#chronicillness #chroniclife #ChronicPain #Spoonielife #hiddenillness #invisibleillness #ChronicIllnesses #Spoonies #InvisibleDisabilities https://thesickpanda.tumblr.com/post/174988037534/thefibrodiaries-disabled-people-who-can-walk

"Are ME/CFS Patient Organizations 'Militant'?" by @crblease & @keithgeraghty https://link.springer.com/article/10.1007%2Fs11673-018-9866-5 … #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

"Are ME/CFS Patient Organizations 'Militant'?" by @crblease & @keithgeraghty https://link.springer.com/article/10.1007%2Fs11673-018-9866-5 … #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

From: "Are ME/CFS Patient Organizations 'Militant'?" by @crblease & @keithgeraghty https://link.springer.com/article/10.1007%2Fs11673-018-9866-5 … #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PACETrial

From: "Are ME/CFS Patient Organizations 'Militant'?" by @crblease & @keithgeraghty https://link.springer.com/article/10.1007%2Fs11673-018-9866-5 … #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PACETrial

From: "Are ME/CFS Patient Organizations 'Militant'?" by @crblease & @keithgeraghty https://link.springer.com/article/10.1007%2Fs11673-018-9866-5 … #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PACETrial

From: "Are ME/CFS Patient Organizations 'Militant'?" by @crblease & @keithgeraghty https://link.springer.com/article/10.1007%2Fs11673-018-9866-5 … #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #PACETrial

Extract from the revised CDC website: https://www.cdc.gov/me-cfs/treatment/index.html … #MEcfs #CFS #MyalgicE

Extract from the revised CDC website: https://www.cdc.gov/me-cfs/treatment/index.html … #MEcfs #CFS #MyalgicE

From: "Are ME/CFS Patient Organizations 'Militant'?" by @crblease & @keithgeraghty https://link.springer.com/article/10.1007%2Fs11673-018-9866-5 … #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

From: "Are ME/CFS Patient Organizations 'Militant'?" by @crblease & @keithgeraghty https://link.springer.com/article/10.1007%2Fs11673-018-9866-5 … #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

From: "Are ME/CFS Patient Organizations 'Militant'?" by @crblease & @keithgeraghty https://link.springer.com/article/10.1007%2Fs11673-018-9866-5 … #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

From: "Are ME/CFS Patient Organizations 'Militant'?" by @crblease & @keithgeraghty https://link.springer.com/article/10.1007%2Fs11673-018-9866-5 … #MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Data showing how #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome greatly affects people's ability to work or study. From Functional Status & Well-Being in People with ME/CFS by @mecfsbiobank https://link.springer.com/article/10.1007%2Fs41669-018-0071-6 …

Data showing how #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome greatly affects people's ability to work or study. From Functional Status & Well-Being in People with ME/CFS by @mecfsbiobank https://link.springer.com/article/10.1007%2Fs41669-018-0071-6 …