ME/CFS: Graded Exercise Therapy (GET). Experiences & Comments (excl. 2015 MEA CBT/GET/Pacing Survey)

ME/CFS: Graded Exercise Therapy (GET). Experiences & Comments (excluding 2015 MEA CBT/GET/Pacing Survey)
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25% ME Group membership statistics on #GET & #CBT (summer 2016 issue…

ME Group membership statistics on & (summer 2016 issue…

New peer-reviewed commentary from me: "Do graded activity therapies cause harm in chronic fatigue syndrome?" http://journals.sagepub.com/doi/pdf/10.1177/1359105317697323  A lot of this focuses on the PACE trial as I was invited to submit a commentary following Keith Geraghty's PACE-gate piece.

New peer-reviewed commentary from me: "Do graded activity therapies cause harm in chronic fatigue syndrome?" http://journals.sagepub.com/doi/pdf/10.1177/1359105317697323 A lot of this focuses on the PACE trial as I was invited to submit a commentary following Keith Geraghty's PACE-gate piece.

http://www.pghcitypaper.com/pittsburgh/despite-the-number-of-americans-living-with-me-cfs-little-is-known-about-the-debilitating-illness/Content?oid=1968212

http://www.pghcitypaper.com/pittsburgh/despite-the-number-of-americans-living-with-me-cfs-little-is-known-about-the-debilitating-illness/Content?oid=1968212

From: "Worse Than the Disease" (Oct 27)  http://undark.org/article/chronic-fatigue-graded-exercise-pace/  I collated survey data in my open access paper: "Reporting of Harms Associated with Graded Exercise Therapy and Cognitive Behavioural Therapy in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" http://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx

From: "Worse Than the Disease" (Oct 27) http://undark.org/article/chronic-fatigue-graded-exercise-pace/ I collated survey data in my open access paper: "Reporting of Harms Associated with Graded Exercise Therapy and Cognitive Behavioural Therapy in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" http://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx

Great to have journalists of the calibre and tenacity of Julie Rehmeyer & David Tuller doing a deep investigation of the issues and then reporting on them.  http://www.virology.ws/2016/01/07/trial-by-error-continued-did-the-pace-trial-really-prove-that-graded-exercise-is-safe/  I'm quoted in it. I have published a paper and several letters on the issue of the safety or otherwise of graded exercise/activity programs. All but my 2 most recent letters can be read on my ResearchGate page

Great to have journalists of the calibre and tenacity of Julie Rehmeyer & David Tuller doing a deep investigation of the issues and then reporting on them. http://www.virology.ws/2016/01/07/trial-by-error-continued-did-the-pace-trial-really-prove-that-graded-exercise-is-safe/ I'm quoted in it. I have published a paper and several letters on the issue of the safety or otherwise of graded exercise/activity programs. All but my 2 most recent letters can be read on my ResearchGate page

Dr William Weir describes a horrific case involving a child with #MyalgicE and exercise in the UK.    #MEcfs #CFS #MyE #NeuroME #PwME #SEID

Dr William Weir describes a horrific case involving a child with #MyalgicE and exercise in the UK. #MEcfs #CFS #MyE #NeuroME #PwME #SEID

.@TomKindlon (2017) on the problems of using PACE to make claims about the safety of 'rehabilitation' with CBT/GET. http://journals.sagepub.com/doi/full/10.1177/1359105317697323 …

.@TomKindlon (2017) on the problems of using PACE to make claims about the safety of 'rehabilitation' with CBT/GET. http://journals.sagepub.com/doi/full/10.1177/1359105317697323 …

David Tuller podcast on graded exercise therapy and PACE Trial  (October 31)  0:25-19:24  "Join our podcast host and former NYT Science Times editor David Corcoran as he discusses with reporter David Tuller his recent story for Undark — an exposé of recent science that seemed to support a popular therapy for chronic fatigue syndrome, and which is now unraveling."  https://goo.gl/59eqDt i.e. http://undark.org/2016/10/31/undark-podcast-chronic-fatigue/

A popular therapy for chronic fatigue syndrome made many patients worse. That research supporting it is now unraveling adds insult to injury.

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