Tilly Moments: The PACE Trial Data The Grief Of A Mother Lion See paragraph: "As a mother I roar but do ..."
An example of one of the many people with #MyalgicEncephalomyelitis who have been damaged by an exercise program yet invariably this is not officially recorded anywhere. From "Time for Unrest: Why patients with ME are demanding justice" http://www.independent.co.uk/news/long_reads/why-patients-me-demanding-justice-millions-missing-chronic-fatigue-illness-disease-a8133616.html #MEcfs #CFS
New peer-reviewed commentary from me: "Do graded activity therapies cause harm in chronic fatigue syndrome?" http://journals.sagepub.com/doi/pdf/10.1177/1359105317697323 A lot of this focuses on the PACE trial as I was invited to submit a commentary following Keith Geraghty's PACE-gate piece.
From: "Worse Than the Disease" (Oct 27) http://undark.org/article/chronic-fatigue-graded-exercise-pace/ I collated survey data in my open access paper: "Reporting of Harms Associated with Graded Exercise Therapy and Cognitive Behavioural Therapy in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" http://iacfsme.org/PDFS/Reporting-of-Harms-Associated-with-GET-and-CBT-in.aspx
The experience of an Australian patient #4: From: "Post-Exertional Malaise (PEM) and Graded Exercise Therapy (GET) in #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome (ME/CFS)" by S. Eyssens 2017 https://emerge.org.au/wp-content/uploads/2018/02/PEM-GET-Primer-December-2017.pdf … #MEcfs #CFS #MyalgicE
Dr William Weir describes a horrific case involving a child with #MyalgicE and exercise in the UK. #MEcfs #CFS #MyE #NeuroME #PwME #SEID
Free full text: "Studies on Cognitive Behavioral Therapy & Graded Exercise Therapy for ME/CFS are misleading" English language version: https://www.researchgate.net/publication/309351210_Studies_on_Cognitive_Behavioral_Therapy_and_Graded_Exercise_Therapy_for_MECFS_are_misleading Swedish language version: http://socialmedicinsktidskrift.se/index.php/smt/article/view/1450/1255
The experience of an Australian patient #3: From: "Post-Exertional Malaise (PEM) and Graded Exercise Therapy (GET) in #MyalgicEncephalomyelitis/#ChronicFatigueSyndrome (ME/CFS)" by S. Eyssens 2017 https://emerge.org.au/wp-content/uploads/2018/02/PEM-GET-Primer-December-2017.pdf #MEcfs #CFS #MyalgicE