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ME/CFS: Research - critiquing particular studies (excluding PACE Trial)

Collection by Tom Kindlon

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Tom Kindlon
Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much Posted February 2019 by Hilda Bastian Chronic Fatigue Syndrome Diet, Chronic Fatigue Symptoms, Flu Like Symptoms, Study Design, February 8, Fibromyalgia, The Help, In This Moment, Exercise

Consumer-Contested Evidence: Why the ME/CFS Exercise Dispute Matters So Much - Absolutely Maybe

Sometimes, a dispute with a consumer movement comes along that has profound implications for far more than the people in it. I…

How payments from insurance companies might potentially bias proponents of CBT and/or GET for ME/CFS (such as the PACE Trial investigators) Activities Of Daily Living, Insurance Benefits, Health Research, Insurance Companies, Cognitive Behavioral Therapy, Chronic Fatigue Syndrome, Cbt, Medical Advice

How payments from insurance companies might potentially bias proponents of CBT and/or GET for ME/CFS (such as the PACE Trial investigators)

"How payments from insurance companies might potentially bias proponents of CBT and/or GET for ME/CFS (such as the #PACETrial investigators)"

June 29 blog post by @spoonseeker which critically analyses extracts from the #GETSET manual ii.e. a trial of graded exercise Smoke And Mirrors, Trials, You Got This, Manual, June, Exercise, Blog, Ejercicio, Textbook

Do GET Yourself

GETSET, the latest paper on graded exercise therapy by lead PACE investigator Peter White (et al), provides an excellent opportunity to probe into the nitty gritty of such a trial. The study requir…

On Your Marks GETSET: Don’t Go – Major Graded Exercise ME/CFS Trial Underwhelms (Again) Mortality Rate, Show Me The Money, National Institutes Of Health, Chronic Fatigue Syndrome, Kinds Of People, Fibromyalgia, Trials, Research

On Your Marks GETSET: Don't Go - Major Graded Exercise ME/CFS Trial Underwhelms (Again) - Health Rising

The Lancet — one of the most highly regarded journals in the world — is back on the chronic fatigue syndrome (ME/CFS) community’s front page. That’s probably enough to either elicit curses from ME/CFS patients or to produce a strong desire to hide under one’s bed. Lancet’s ME/CFS offerings of […]

Spotlight on GETSET Julie – spoonseekerdotcom Peter White, Spotlight, Study, Studio, Studying, Research

Spotlight on GETSET Julie

This follows on from my previous post on Prof Peter White’s new GETSET study: Do GET Yourself… The star of the GETSET guide is ‘Julie’, a (presumably) fictitious patient who valiantly a…

Here's a summary words) of the piece by journalist David Tuller on the FINE Trial that came out on Nov "Trial By Error, Continued: Why has the PACE Study’s “Sister Trial” been “Disappeared” and Forgotten? Chronic Fatigue Syndrome, Summary, Coming Out, Trials, Sisters, David, Study, Words, Going Out

PACE trial's 'sister' study overlooked - #MEAction Network

In his Virology blog, David Tuller examines results of ‘sister’ to the PACE trial